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Posts Tagged ‘special needs’

I am hoping that everyone had a great 4th of July holiday with their family, friends and neighbors. The kids and I had fun decorating the front porch earlier in the week and then fireworks with my parents on the 4th.  The good news is, we got the air conditioner situation figured out so now the kids and I have a/c. That is a massive, major plus especially during these heat wave… yuck. This heat can suck the life and motivation right out of the most determined person!

Even though, I am not making a lot of head way physically, I am learning a lot about myself as a person, woman and mother. For starters, I give up way too easily, lol! One of the ways I have been trying to overcome that flaw, is to push thru what ever it is I am feeling. If the kids are fighting, the baby is crying, the house is trashed and I have a headache, it is a lot easier to sit on the couch and watch the Law & Order marathon then it is to push thru the headache, discipline the kids, console the baby and clean the house. And after a full day of letting my family and myself down, the last thing I want to do is hop on that elliptical trainer and work out for an hour. It is just a good old fashioned ‘domino effect.’ I am my own worst enemy. One of the things I have to constantly remind myself is, Things are not going to change over night. Nor are they going to change within the first week. It shouldn’t come as a big surprise to anyone that I am a very impatient person. I guess that is another flaw I need to work on, lol! However, I refuse to quit and know that everything is going to fall into place, in due time.

I am very excited to announce that my 18 month old daughter, Faith, has finally taken her first steps. She was diagnosed with a genetic deformity called Chromosome 15q Duplication Syndrome (or Dup 15q for short) which has caused delays in her fine/gross motor skills among other developmental milestones (speech being one of them). One June 25th, while in Occupational Therapy, she took her first steps!! It was definitely a time for some serious celebration! I don’t think I could have posted it to Facebook fast enough, lol! When a couple has a child with special needs, caring for them and all of their medical issues can get very overwhelming. All of that gets doubled when there is only one parent in the picture, which makes it easy to forget all the little things in life that makes life worth living. When I am at my wits end I have to force myself to stop and remember all things I am thankful for. I strongly suggest that everyone Keeps a little journal to write down everything you love and appreciate in life. Write in it everyday… It only takes a couple of minutes but the positive effects are endless.  When you are having a rough day or in an overwhelming situation, pull the journal out and skim through the pages. I promise, it will instantly lift your spirits.

The Little Things

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